CP - North news

News from CP - North

Derek Asuman defended his doctoral thesis 'Labour market consequences of cerebral palsy in Sweden' September 15 2023 at Lund University. Our warmest congratulations to Dr. Derek!

 

CP-North reserchers were well represented at the AACPDM conference in Chicago 10-13.9.2023.

Doctoral student Jessica Stockman presented her study Ankle-Foot Orthoses Among Children With Cerebral Palsy: A Cross-Sectional Population-Based Register Study Of 8,928 Children Living In Sweden, Norway, Finland, Iceland, Scotland, And Denmark (picture below)

Master student Stine Johansen presented her master thesis 'Use Of Primary Healthcare Services Among Children and Youths with Cerebral Palsy in Norway, A Registry-Based Study'. Stine´s abstract was one of top 10 abstracts and nominated for Gayle G. Arnold Award for Excellence.

Stine Johansen (middle) with her supervisors Guro Andersen (left) and Sandra Julsen Hollung (right).

Matti Ahonen, MD, Associated Professor, presented 'Surgery for Neuromuscular Scoliosis Is Associated with Reduced Pulmonary Mortality in Children with Cerebral Palsy'. The abstract was top 10 for Best Adult Paper Award.

Ira Jeglinsky, Pt, Associated Professor, presented 'Health Information Behavior of People with Cerebral Palsy'.

 

 

 

CP-North researchers met in Iceland

CP-North researcher Johan Jarl and doctoral student Derek Asuman spent a month in Iceland October/November 2022, visiting CP-North researcher Tinna Laufey Ásgeirsdóttir and post doc Hjördís Harðardóttir. Tinna has got funding from Icelandic Research Fund for a three year health economic project “Living Life with Cerebral Palsy”. Researchers from Iceland and Sweden collaborate in the project. During the visit they worked on Derek´s study “The impact of child disability on parental labour market outcomes” and Hjördís´s study “The likelihood of re-partnering for single and divorced parents to children with Cerebral Palsy”. During their visit they also attended an Icelandic national seminar on social science, Þjóðarspegillinn (https://thjodarspegillinn.hi.is/ ).

 

Several CP-North researchers attended the CAPA conference.

The CAPA conference had participation as the key focus, and one aim was to identify research questions needed to be answered in order to get evidence-based knowledge about the benefits of participation. People from all over the world met in the beautiful Beitostølen in Norway to listen to inspiring key note presentations, and to discuss both in and between workshops. We also had the opportunity to visit the Beitostølen Health Center and try different adapted sports.

CP-North was well represented at the EACD Conference 2022

The European Academy of Childhood Disability Conference was this year in Barcelona May 18-21. CP-North presented several abstracts during the conference.

CP-North researcher Ann Alriksson-Schmidt, doctoral student Derek Asuman and master student Samu Mtutu.

Erasmus fellow Melinda Rocci

CP-North researchers met in Kastrup

Most of the CP-North researchers met April 11-12 in Kastrup, Denmark. We had fruitful discusses about reporting, ongoing and future studies and the future of the CP-North programme. Professor Gunnar Hägglund, initiator of CP-North and PI from the start will resign from being PI, Associate professor Ann Alriksson Schmidt will take over the PI role. We also had the pleasure of welcoming new researchers; Gija Rackauskaite and Christina Hoei-Hanssen from Denmark, and Mika Gissler and Markus Keski-Säntti from Finland.

May we introduce our project assistant

Vibeke Müller is a project assistant working on the project “Having a child with Cerebral Palsy: Effects on parental divorce risk, mental health, and likelihood of having additional children”.

In August 2020, Ms. Vibeke Müller – a health economist – began to work as a project assistant at the Health Economics Unit at Lund University. Her work includes investigating the effects of having a child with CP on parental risk of divorce, mental health, and the likelihood of having additional children. Further, she will examine how these outcomes affect each other and whether personal assistance ameliorates potential negative effects of having a child with CP on the parental outcomes.

Health and Wellbeing of Individuals with Disability
Deadline for manuscript submissions:
30 September 2021

Message from the Guest Editors:
Disability affects millions of people globally, as well as their families and society. Some individuals are born with disabilities from birth, perhaps due to a congenital medical condition or an event that happened during delivery. Others acquire disability at a later stage of life, for instance through a traumatic accident during midlife. Others still age into disability in the later years of life. Disability is multifaceted, and how it is experienced, perceived, and discussed differs across geographical and academic cultures and traditions. In the last few decades, disabilityrelated research has been largely shaped by the International Classification of Functioning, Disability, and Health (ICF) framework, where it is recognized that activities, participation, the environment, and personal factors, in addition to body function and structures, interact to shape a person’s life. In this inaugural Issue of Disability, we encourage submissions related to quality of life (QoL), wellbeing, and health in individuals with disabilities across the lifespan from a person-centered multidisciplinary perspective.

Guest Editors:

Dr. Ann Alriksson-Schmidt Department of Clinical Sciences Lund, Skåne University Hospital, Orthopedics, Lund University, 221 00 Lund, Sweden ann.alriksson-schmidt@ med.lu.se

Dr. Ira Jeglinsky-Kankainen Arcada, University of Applied Sciences, 00560 Helsinki, Finland ira.jeglinsky-kankainen@ arcada.fi

Deadline for manuscript submissions: 30 April 2021.

CP-North researcher Sandra Julsen Hollung presented a free paper presentation Friday September 25 at the AACPDM 74th Annual Meeting entitled:

Prevalence and severity of individuals with cerebral palsy in the Nordic countries and Scotland, a CP-North study.

New CP-North doctoral student!

Jessica Stockman PhD student with the project "Orthosis use and comorbidity in individuals with cerebral palsy and myelomeningocele"

At the beginning of 2020, Ms. Jessica Stockman—a physiotherapist at the habilitation center in Nyköping, Sweden— began her doctoral studies at Lund University. Ms. Stockman will continue her clinical work and complete her doctoral studies on a part-time basis. Her doctoral work include investigating the use of orthoses in children and adolescents with CP. She will also study the prevalence, type and distribution of comorbidities related to CP over the life span. We welcome Jessica and wish her good luck!

CP-North was well represented at the AACPDM congress in Anaheim in September 2019

Johan Jarl presented education outcomes for children with CP in Sweden.

The 11th Congress on the European Pain Federation in Valencia

Amanda Burman Rimstedt presented a CP-North study at the 11th Congress on the European Pain Federation in Valencia, Spain in August 2019.

May we present two of the PhD students in the CP-North project

May we present two of the PhD students in the CP-North project. Amanda Burman Rimstedt is a nurse, who has worked within the area of public health. Her research focuses on pain in children and youth with disabilities, with a focus on children/youth with CP.

Derek Asuman is the first official CP-North PhD student. He´s research is focusing on the health economic aspects of CP in the Nordic countries, including labor market, educational outcomes and health services.

Copenhagen in the end of August 2019

The CP-North researchers spent two successful and fruitful days in Copenhagen in the end of August. During the days we shared experiences and planned for new studies within the project. We are happy that user representatives Virpi Siiskonen, David Heyerdahl and Anna Myhrman could join the meeting

köpenhamn

CP-North was represented at the EACD conference in May

CP-North was represented at the European Academy for Childhood Disability Conference in Paris in May 2019.
Reidun Jahnsen and Guro Andersen presented the poster.

Great interest among budding health economists to work with CPNorth!

Sixty-three applicants applied for the doctoral position with CPNorth that recently closed. Health economist, and will be supervisor Associate Professor Johan Jarl was pleased with the turn-out “We are delighted that there were so many qualified applicants who were interested in working with CPNorth” Now, the journey has begun to select the candidate who will become the first official CPNorth PhD student.

CP-North was represented at the AACPDM annual conference


CP-North was represented at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) in Cincinatti, Ohio, USA in October 9-13. Two posters related to CP-North was presented. “CP-NORTH: Living Life with Cerebral Palsy in the Nordic Countries?” and “Health-related Quality of Life in Adults with Cerebral Palsy ” arose both interest among the congress participants.

Copenhagen 30-31.8.2017

Our project CP-North: Living life with cerebral palsy in the Nordic countries, had its kick-off in Copenhagen 30-31.8.2017. We had two days of inspiring discussions, brainstorming and planning for the near future.

CP-Associations in Denmark, Norway, Sweden, Iceland and the Faeroe Islands met 23-24.9.17 in Iceland


CP Norden, which is a network between the CP-Associations in Denmark, Norway, Sweden, Iceland and the Faeroe Islands met 23-24.9.17 in Iceland. The participants were introduced to CP-North. Many had heard of CP North and everyone was happy that we were taking the effort to do this research.